The clinical programs located within the Centre are an example of the partnership of Vancouver Coastal Health clinical care and UBC clinical research/trials.
The Centre for Huntington’s Disease (CHD) provides comprehensive care and support for individuals affected by Huntington’s disease (HD). The CHD also offers education and information about the disease and referrals to community services for patients and families affected by HD.
The expertise of the CHD research team spans the bench-to-bedside continuum, providing opportunities for family participation in cutting-edge clinical research trials. The CHD is also a teaching resource for many disciplines in the medical and foundational sciences, as well as the university and general public.
Below are the answers to some frequently asked questions about the Centre for Huntington Disease.
Patients are seen on Tuesdays only. Once your doctor has faxed in your referral, you can make an appointment by contacting Sandy Hazan at 604-822-7366.
Phones are answered Monday to Thursday: 7 am -4 pm
Appointments are made with a neurologist (approximately 1 hour), a psychiatrist (approximately 1 hour), and a social worker (30 minutes + for assessment of needs with follow-up as required). Should patients or family members make a request, appointments to speak with the clinical research manager and/or coordinator and genetic counsellor can be accommodated with advance notice.
The CHD has many opportunities to participate in research. You can find them here. Note that there is a drop-down menu for Clinical Research.
If you are interested in getting involved with research, you can reach out to Joji Decolongon, clinical research manager at 604-822-7928 or firstname.lastname@example.org
You can also reach out to clinical research coordinator Mike Adurogbangba at email@example.com